Just thought I would write a quick little notes as to our happenings lately. I am writing this from my sister's house in Florida. Yes, I said Florida! The trip was very unexpected and no time to plan for. I have been really struggling these last few months with my health. I had the spinal tap which only gave my head relief for a few short hours and then I was back to the same old aching every day. Just when I thought it really couldn't get any worse, I got a kidney stone. I literally thought I was going to die. In the mean time my sister was here in Floriday having a hysterectomy done. She has been wanting me to come out but my health was preventing me from going anywhere. After a long painful week of trying to pass the stone, heather called me sunday morning and said they had a ticket for me to fly out the very next morning. I hung up the phone, had a complete melt down with hours of tears, and then packed my bags and got on the plane. I am terrified of traveling because of what it does to my head. Tyler gave me a blessing of comfort and here I am. This was a much needed trip. More so than I knew. Lucy came with me and we have been here taking care of my poor sister and her throwing up every day that we have been here. I feel horrible for her. I know how hard hysterectomies are to recover from, since I have had one myself.
I also have benefited being her by being able to get into contact with some other neurologists that my sisters friend, Michelle knows. My head has felt absolutely wonderful here. I have only had to take my medication once so far. This is mainly because of us being a sea level here. It has been nice to have a break from my head throbbing, and every day nausea and the break not being from a spinal tap. So I think Tyler and I are finally facing the fact that a shunt placement in my head is our next step. The thought terrifies me, but if I can be head ache free for more than a few days it will be worth it. Now that my head medication is causing kidney stones and I am being forced to face reality here.
I come home on monday and back to the struggles. And back to a full couple of months of dr. appointments. I am so thankful for tyler and all he has had to put up with me and for sending me here while he stayed home and took care of kids. I definitely would not make it if I were not married to him.